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2012-03-23 at 14:49

Trip to India filled with hope for MS patient

By Jodi Lundmark, tbnewswatch.com
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Ross Burstrom is putting all of his hope on a trip to India.

The 53-year-old Shabaqua resident has Multiple Sclerosis and is leaving for India on April 1 with his sister Brenda and brother-in-law Ron Berringer for the controversial Chronic Cerebrospinal Venous Insufficiency procedure.

“His MS is progressing. He’s at a point now where he can’t wait any longer for the government to do their studies,” said Berringer. “Five years down the road possibly Ross might not be able to speak or feed himself.”

“This is his last opportunity I think for anything to be done that might help him,” Berringer added.

Italian doctor Paolo Zamboni developed the CCSVI procedure, also known as the Zamboni liberation procedure, which uses balloon angioplasty in certain neck veins to improve blood flow.

Some people who have had the procedure say they no longer have any symptoms of MS. Others reported no change.

Burstrom has had MS for 15 years; Berringer said he’s fortunate because most people with MS take half the time to get to the point Burstrom is at now.

And if he continues at the rate he is now, in 10 years Burstrom will be dead.

“I don’t think many people realize MS is a fatal disease,” said Berringer.

The trip to India will be expensive. They estimate the total cost to be $35,000. Both Burstrom and his sister have used their savings to put towards the journey, but they still need help covering the rest of the costs.

“A lot of people have been very generous so far with contributions,” said Berringer.

They will be hosting a spaghetti supper March 24 from 5 p.m. to 7 p.m. at the Calvary Lutheran Church to raise money for the trip. 

Supper will be served continuously throughout the evening and good will donations will be accepted at the door.

 

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Comments

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countrychick says:
Good Luck and God Bless you on your journey. I hope all goes well for you! :)
3/23/2012 3:32:17 PM
annas says:
Ross, It is not necessary to go to India for your procedure. There are many extremely reputable clinics in the US. I had mine done in Albany, There are a number of places in California. Please contact me or go to CCSVI in Multiple Schlerosis There are people to help you get an appointment at half the cost and without the stress of travelling overseas.
3/23/2012 6:14:07 PM
annas says:
Ross, There are multiple CCSVI clinics in the US. I went to Albany. Reconsider going to India. You can go to a clinic in the US for half the cost, never mind the stress of overseas travel. Feel free to contact me or CCSVI in multiple schlerosis on FB
3/23/2012 6:49:45 PM
hockeyskates says:
Good luck Ross. Hope everything turns out ok.
3/23/2012 10:44:31 PM
doug says:
why India? there are better/cheaper options in the US.

my fiance went to Brooklyn. Cost was $10,000. you could get three treatments for the price of going to India.

i wish good blood flow for you.
3/24/2012 7:55:32 AM
Ronald says:
I strongly suggest looking at Albany New York USA where price is one third and follow up much better afforded and managed. I have been there...1st rate place.
3/24/2012 11:10:11 AM
ccsvi2891 says:
There are so many other places where you could get the treatment for a much lesser cost.
I know of a place in dayton, OH that offers it and the cost is around $8000
I wish you knew of this before planning for India. But besides that, I wish you the best of luck and hope you get great positive results!
3/25/2012 4:19:35 PM
combatwombat says:
check the comments regarding treatment in the USA. I can only assume , probably correctly that travel medical will not cover as its experimental treatment.
If God forbid , something goes wrong in India, and you need a medical flight back, or a medical assisted flight back then your costs will skyrocket. I Had a friend get hurt in austria years ago, flight home 40,000 dollars ..it was covered as it was "accidental"... and that was 15 years ago!
.
3/28/2012 1:42:33 PM
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