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2013-05-28 at 16:21

Mauro introduces private member’s bill

By Jodi Lundmark,
ENERGY 103 104Play Minute to Win it at 7:20 weekdays mornings with Kaile Jaggard and WIN! on your station for 80’s 90’s and Now…Energy 103 104 Click Here!

A local MPP wants celiac disease testing to be covered by the Ontario Health Insurance Plan.

Bill Mauro (Lib., Thunder Bay-Atikokan) introduced a private member’s bill Tuesday afternoon in Queen’s Park asking for an amendment to the Health Insurance Act to include serological testing for celiac disease.

One per cent of the Canadian population has celiac disease, which is intolerance to gluten. The negative reaction to gluten causes damage to the small bowel and reduces their ability to absorb nutrients.

The long-term impacts can include vitamin deficiencies and the disease is associated with type 1 diabetes, Down syndrome, arthritis, depression, neuropathy, infertility and osteoporosis.

Mauro said the numbers are significant and of the one per cent of Canadians living with the disease, 90 per cent of them are undiagnosed.

“The longer they go undiagnosed … health implications obviously become more severe,” he said, but there is good news.

A serological test can be used for early detection and the solution to living with the disease is simple, affordable and effective.

“It’s simply controlled by diet. Through diet you can live a long and healthy life,” Mauro said.

Mauro said he’s aware that a private member’s bill may not be successful, but it will raise awareness around the issue.

“We have to start somewhere,” he said.

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tadzup says:
Seriously? This is something he feels is so important that he should fight for? ONE percent of Canadians have Celiac like you say. The rest of these people are just joining in the new "gluten free" fad diet. Do they really need a test if eating gluten free makes them feel better?

How about throwing support behind other (tri-party) private members' bills that your constituents have indicted are important to them, and that you have ignored? How about returning a phone call or email?
5/28/2013 11:12:51 PM
TBDR says:
you don't think helping 120,000 Ontarians is important?
5/29/2013 2:33:17 AM
tadzup says:
I think more Ontarians are affected by other issues, issues that are more important in my opinion.

I think it would be great to have all kinds of tests covered by OHIP, but I question his motives for this particular one. It's recently become a popular issue because of the gluten free diets. Seems like he's just looking for votes on a fairly non-controversial issue, rather than pushing for things that matter but might lose him a vote here & there from bitter folks who don't like change.
5/29/2013 11:40:56 AM
serena says:
Some of us have digestive issues that are quite painful and in order to diagnose these issues the test for celiac disease is one of them to rule it in or out. It is quite expensive. Perhaps you can afford it but many can't. I had the test to rule celiac disease out which then led me on another path to figure out what is wrong with my stomach.
5/29/2013 7:21:17 AM
Sue-N says:
Ontario is the only province that does not cover this blood test, despite the fact that their own panel of medical experts recommended that they do so. Instead, they pay for thousands of dollars of tests and doctor's visits while patients desperately try to figure out what is wrong. It is time to get past the short term thinking. Thanks to MPP Mauro for bring attention to this problem that affects the more than100,000 undiagnosed Ontarians.
5/29/2013 8:08:21 AM
Christine says:
I think that you need to be a bit more informed before you dismiss this tadzup. It has been scientifically proven that undiagnosed Celiac disease represents a huge financial burden for the health care system (see Dr. Joe Murray's paper on the economics of celiac disease). Many of this 1 in 100 Canadians that have Celiac disease don't know it and they suffer from various symptoms that are not easily linked to their diet. Often these patients bounce from doctor to doctor being tested for a variety of different illnesses. In some cases, family doctors will test for other causes and avoid sending patients for Celiac because of the direct cost to the patient (between $125 - 200). Meanwhile all the other testing, missed days at work and complications of leaving the condition untreated for the approximately 12 year lag it takes to diagnose these patients, costs YOU, the taxpayer, way more than the cost of covering the testing.
5/29/2013 8:25:41 AM
lori says:
Tadzup that you don't see this as a good thing, speaks more to your politics then it does about the issue.
5/29/2013 8:37:07 AM
stuck? says:
This is good news.

I haven't been diagnosed with celiac disease myself, but I know that I have an extreme intolerance to any gluten related item in general.

Gluten is in all kinds of foods and it's damn frustrating to filter through every single item listed on the ingredients portion of packaging. One little overlook can have massive negative effects on a person.

Also, gluten free foods are often double/triple the prices of regular foods and only offer (maybe) half of the portions of non-gluten foods.

When I used to buy beer, a 6 pack of gluten free beer was aproximately $20 and it didn't even taste all that great. Now after a few years, there are more varieties (beer and foods) but the prices are still outrageous in comparison.

Why shouldn't we try to help out 1% of the population? Are we that self absorbed that helping out your fellow person is a burden because we are only 1% of the population?

So, 1 person out of 100 is ill and we shouldn't care
for them because it's 1%?
5/29/2013 10:25:12 AM
celiac mom says:
Tadzup Celiac is very serious and hereditory. I have a child with this and whole family needs to be tested, to do this would cost me $500 out of my pocket, would you care to leave that money at the lab for my family.........
5/29/2013 1:41:55 PM
Giverto2 says:
I think this is great news. I, as well as both of my children, have Celiac Disease. My sister has Celiac Disease. We believe my Grandfather had it and it eventually killed him via colon cancer. How much did that cost the government.

I believe my celiac became active when I was a teenager. I am now 45. How much did all those doctor visits cost the government? In Italy, infants are tested at birth. Wouldn't that make life a lot easier and have a lower cost in the long run?

I suffered, and I did suffer, for 30 years being undiagnosed, I wouldn't wish that on anyone...
5/30/2013 9:43:19 AM
lori says:
Tadzup, the more you type the dumber you sound.
This is somehow a bad things because you think other issues are more important. If you had type 2 diabetes should I care if it is because you are overweight. Should I care you have cancer because you chose to work in a mine, or that you have skin cancer because you suntanned extensively your whole life. Should I care you needed extended care because you rode a motorcycle or did extreme sports. Thank goodness we have elected officials and not clowns like you who think you somehow have the corner on what should be covered and what shouldn't. if a simple test can save someone like Giverto2 years of pain and agony, lets get it done. Your posting ranks right up there on the stupidity scale.
5/30/2013 2:58:43 PM
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